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2009
(39)
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December
(9)
- News on Important New Studies Underway
- Fellow Britons Unite For The Truth!
- Male CFS Patients May Have Option
- CDC Damage Control: ME/CFS Research Group Relieved...
- Apricitabine May Be Effective Against XMRV
- Antiviral Study Shows Few Options
- Two new Studies: Part I - Co-infections point to t...
- Ampligen "Death Blow" Another Tragedy for CFS Suff...
- Research Must be Pursued to The End.
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November
(19)
- When Can Patients Expect Approved Therapies?
- Norwegian Study Offers Clues
- The Modus Operandi: Part II
- Vactruth strikes again - with even more defamatory...
- The Modus Operandi of XMRV: Pt1
- Scientific Consensus is Building Towards XMRV as C...
- Raltegravir is likely effective against XMRV
- Will Ampligen Ever See The Light of Day?
- Chicoric Acid - A Natural Integrase Inhibitor.
- Vactruth.com's Allegations of Vaccines Containing ...
- Google Robots Identifying My Blog As Spam?
- Should You Get Tested For XMRV Now?
- CFS - History of an Old Disease With Many Aliases
- Gulf War Syndrome - Evidence For An Insect Vector ...
- Is it time for CFS/FM/Gulf War Syndrome patients t...
- Dr. William Reeves - Another Mark Whiteacre? Crimi...
- Significance of Co-morbidity of FM CFS/ME and Auto...
- Possible Explanation for Pain Processing Abnormali...
- A CFS/ME/FM Timeline - We Knew About A Retrovirus ...
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December
(9)
About Me
- Fibromyalgia Research
- My name Dr. Timothy Luckett. I hold an undergraduate degree in Biochemistry from Newcastle Unversity, an Msc in Biochemistry from University of Alberta, PhD in Cellular and Molecular Biology from Cambridge University, and I have worked for the CDC as a postdoctoral fellow, and worked for Orchestra Therapeutics, until their insolvency last year. My research interests is retroviruses - which was an area of active research at Orchestra Therapeutics. The recent discovery of XMRV as a potential link to Chronic Fatigue Syndrome has become very much of a research interest of mine, as my younger sister is has struggled with the disorder since the age of 19. Since my departure from Orchestra Therapeutics, I am now back in the UK, awaiting a faculty position at a university.
Well less noise is good less politics too from the nay sayers but this research is brilliant for ME/CFS and/or Lyme patients.
ReplyDeleteDistinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome
http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0017287
XMRV research is far from a dead issue - until the nay-sayers can actually demonstrate contamination in positive samples from the Whitimore Peterson Institute study and explain why so many CFS/ME samples are positive and so few control samples are, these negative studies are just a lot of noise signifying nothing.
ReplyDeleteDoes this mean you don't believe in xmrv anymore??
ReplyDeleteDr. Alter said to a CFS patient:" 'Keep the Faith' The truth will come out guys.
ReplyDeleteI agree with the comment above. My motto is 'truth will out'. It will happen in our lifetime - I know it. It is the only thing that is keeping me going. The WPI are continuing with their efforts and finally they will overcome the doubters. They will produce too much evidence in the end. It will take a while but we are on the right path - we have to continue being patient and God knows, we are all used to being patient!!
ReplyDeleteI want so much to believe that XMRV is the cause of this sh*tty illness so we could finally start to find treatments and get our lives back, and i did believe until recently however the contamination evidence seems to be building. I don't have the cognitive ability and education to know who to believe and weigh up the evidence in a meaningful way. I will accept the outcome of the blood working group study and really hope that there is no controversy. If XMRV isn't a new human retrovirus causing disease then i hope no more effort/money is spent on a dead end. I'm worried we'll end up in a similar situation to the MMR/Autism debacle.
ReplyDeleteregards, Neal
pretty well dead. but maybe there's some related human gamma retroviruses. they'll have to publish the deep sequences so they can be analyzed by the scientific community
ReplyDeleteI started on Viread and Isentress in February . My doctor says my blood work has shown an improvement in months that would take an AIDS patient 2 years. I've had ME/CFS for 18 1/2 years. I am HIV neg., so my response to the drugs is most likely due to a retrovirus. If it isn't XMRV/MLV it's got to be something similar. I'm not the only one to have taken these drugs off label and gotten the same results.
ReplyDeleteThis issue is far from dead. The Lipkin and one other study will hopefully make the breakthrough in Dec. or Jan.
What I'm not clear on is why the RNase-L factor is not a standardized test for ME/CFS ?
HOW CAN I BE A PART OF YOUR RESEARCH?????? HAVE NO INSURANCE. I WAS A PATIENT OF DR. JOHN CHIA AND HE HELPED ME ENORMOUSLY, HOWEVER i HAVE GOTTEN DIVORCED AND HAVE NO, NADAN NONE HEALTH INSURANCE SO ALL THE PAIN AND TREATMENTS HAT I ENDURED HAS NOW BEEN FOR NOT AS I CANNOT AFFORD TO SEE DR CHIA OR EVEN PAY FOR MEDICATIONS, THEREFORE I HAVE RELAPSED. I AM SUICIDAL, EXPREMELY DEPRESSED AND JUST FLAT DONT GIVE A FUCK ABOUT MYSELF. I GOT INJURED AT WORK AND ALL THE WORK I HAD DONE TO GET HEALTHY AND TO GO INTO REMISSION HAS OF COURSE DIED AND I AM BACK WHERE I STARTED. LIVING IN A SELF-HATERED HELL.
ReplyDeleteIS THERE ANYONE THAT CAN HELP ME?????? WHEN I WAS IN REMISSION AND FEELING BETTER THEN I HAVE EVER FELT IN MY LIFE , I MET A WONDERFUL MAN, BUT NOW I AM AFRAID I AM GOING TO LOSE HIM DUE TO MY ANGER, DEPRESSION, AND CONSTANT AGITATION AND ESPECIALLY MEMORY LOSS. MOST DAYS I FEEL LIKE I WANT IT TO BE THE LAST. I DONT WANT TO LOSE HIM BUT I KNOW THAT I AM PUSHING HIM AWAY. I NEED SOME SERIOUS SERIOUS HELP. CAN ANYONE HELP ME?????? BECAUSE I FEEL THAT I AM ON MY LAST LEG.