tag:blogger.com,1999:blog-3446911767611771282.post6322123790166601617..comments2024-02-13T05:37:09.355-08:00Comments on HOPE FOR FM AND CFIDS SUFFERERS: News on Important New Studies UnderwayFibromyalgia Researchhttp://www.blogger.com/profile/13598167140223702345noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3446911767611771282.post-87539028417832691832010-07-05T07:29:57.995-07:002010-07-05T07:29:57.995-07:00Sign the Petition @change.org:
"Tell the DHHS...Sign the Petition @change.org:<br />"Tell the DHHS to allow the NIH and FDA to publish their papers without undue procedures and hurdles. Preventing these papers from being published diminishes the trust of CFS Patient groups in the CDC and its willingness to deal honestly with this disease. To allow CFS patients and those with Prostate Cancer the best hope of fighting their illness, we must have the best scientific information that our government is capable of producing. Allow the findings to be released with all speed and tell the DHHS to stop playing politics with science."<br /><br />http://healthcare.change.org/petitions/view/xmrv_allow_science_to_progressPerpetuahttps://www.blogger.com/profile/15712426861513371344noreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-49714770425179209042009-12-28T07:24:37.602-08:002009-12-28T07:24:37.602-08:00Guadalajara, MexicoGuadalajara, MexicoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-83052387676160375942009-12-23T02:54:57.421-08:002009-12-23T02:54:57.421-08:00I am sure you will be interested in looking at www...I am sure you will be interested in looking at www.lymediseaseaction.org.uk website and hopefully be open minded enough to see what has been going on which has allowed so many of us to have had their LD diagnosis overlooked.Mary B.http://www.headache-adviser.comnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-36919003336093498462009-12-22T19:06:07.712-08:002009-12-22T19:06:07.712-08:00I can get Spanish translation for you, but I can&#...I can get Spanish translation for you, but I can't find anything linking to the study. Can you post the link here?Jim Khttps://www.blogger.com/profile/04374399990290238852noreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-78642536211409974572009-12-22T09:02:29.312-08:002009-12-22T09:02:29.312-08:00Do you mean Guadalajara in Spain or in Mexico?
We ...Do you mean Guadalajara in Spain or in Mexico?<br />We ,Spanish ,don´t know nothing about studies in our country, except a little one in Barcelone, which is not in course yet, in the IFR Institut Ferran de Reumatologia a private clinic.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-29393563149834119312009-12-22T03:40:54.351-08:002009-12-22T03:40:54.351-08:00In all the justified excitement about XMRV there a...In all the justified excitement about XMRV there are many of us who have been wrongly diagnosed with ME/CFS/Fibro who have found that our symptoms respond to antibiotics and infact go on to be diagnosed with Lyme Disease.<br />I realise this is not your area of specialism but I am sure you will be interested in looking at www.lymediseaseaction.org.uk website and hopefully be open minded enough to see what has been going on which has allowed so many of us to have had their LD diagnosis overlooked.<br />The NICE guidelines say that LD should be ruled out before a diagnosis of ME/CFS but sadly with the current state of the testing upto 50% false negative many patients are not being diagnosed.The IDSA guidelines are currently under review details can be seen on their website which show this is not as simple an illness as IDSA/HPA would have us think.Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.com