tag:blogger.com,1999:blog-3446911767611771282.post1954593514857735748..comments2024-02-13T05:37:09.355-08:00Comments on HOPE FOR FM AND CFIDS SUFFERERS: Testimony From a patientFibromyalgia Researchhttp://www.blogger.com/profile/13598167140223702345noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-3446911767611771282.post-90096856321775275902011-01-22T22:24:04.388-08:002011-01-22T22:24:04.388-08:00Dr. Luckett,
First of all, I appologize for my ba...Dr. Luckett,<br /><br />First of all, I appologize for my bad English.<br /> <br />I would like to know if can I test for MLV/XMRV/PMRV in South America (Brazil), and how can I do that. I didn't get this information from the public health organisms here. Maybe there ...<br /><br />My e-mail: claudiocavendish@yahoo.com.br<br /><br />Thank you ... mostly for comming back.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-57135292548994632182011-01-09T15:54:55.869-08:002011-01-09T15:54:55.869-08:00Dr. Luckett,
Thank you for sharing this patient...Dr. Luckett,<br />Thank you for sharing this patient's story. I am a 33 year old, former runner with CFS, Lyme and XMRV. I am wondering if you could share with me the physician in San Francisco, or pass on my email to Ms. X? I am a fellow blogger, a huge fan of your site and extremely interested in ARV's. Any direction you could provide would be much appreciated! My email is: lannieinthelymelight@gmail.com<br /><br />Thank you for all of the work you do on behalf of this patient community!<br />LannieLannieintheLymelighthttps://www.blogger.com/profile/05090612863646871712noreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-81059995787333127522010-12-31T11:13:59.896-08:002010-12-31T11:13:59.896-08:00Dr Luckett, I hope this woman and her doctor have ...Dr Luckett, I hope this woman and her doctor have been in touch with WPI/Dr Mikovits and/or Dr Jamie Deckoff-Jones. They are collecting anecdotal evidence of physicians and patients trialing ART and will present their findings Jan 17 at Gordon Medical Associates in Santa Rosa CA.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-50705084764607541062010-12-20T11:08:29.425-08:002010-12-20T11:08:29.425-08:00Did anyone see that totally touching documentary &...Did anyone see that totally touching documentary "The Lazarus Effect" about bringing HIV drugs to africa for 40¢ a day? Why does it cost $1500 a month for sick people here, when it can be obtained for 40¢ a day? Perhaps it's a different pair of drugs, but still...<br />Also, perhaps the company that makes Raltegrovir has a free program for people with limited income? Some companies do.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-90434729089775438962010-12-18T00:51:25.915-08:002010-12-18T00:51:25.915-08:00Tenofovir can be had cheaply (under $200/mo for 30...Tenofovir can be had cheaply (under $200/mo for 300mg/day) from an overseas/internet pharmacy because it does not have patent protection in India.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-42861528227508265272010-12-17T02:26:11.491-08:002010-12-17T02:26:11.491-08:00Hey, that's a spectacular progress report. I ...Hey, that's a spectacular progress report. I can't figure out why I didn't hear about this before. Maybe I have to read more groups.<br /><br />Welcome back, Tim. I was afraid the dark side had bought your silence.<br /><br />I see U of A has Broderick working on CFS with both Klimas and Bateman's group. Also, the other Doc that offered commentary on Alter/Lo's paper, and pushes for anti-retroviral therapy trials, is at U of A, too.zachttps://www.blogger.com/profile/15189027321961226572noreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-86385962161445975412010-12-13T23:35:43.200-08:002010-12-13T23:35:43.200-08:00What dose Raltegravir and Tenofovir is she taking?...What dose Raltegravir and Tenofovir is she taking?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-11741837409481053622010-12-12T13:30:16.975-08:002010-12-12T13:30:16.975-08:00could you please contact me via email:
lgrasso_haw...could you please contact me via email:<br />lgrasso_hawaii@yahoo.com<br /><br />i have some questions, but would rather not post publicly.<br /><br />thanks so much.<br /><br />thanks for all the great posts recently!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-30849350267427714932010-12-12T07:17:32.065-08:002010-12-12T07:17:32.065-08:00It's very interesting that it took only two of...It's very interesting that it took only two of the HIV drugs, unlike the three that Dr Deckoff-Jones and her daughter, Ali, are taking.<br /><br />It's the Isentress that costs about $1000/month. I'm so envious of those who have family to help them recover, since my country, my government, and the insurance industry refuse to do so.oerganixhttps://www.blogger.com/profile/12870957662833413723noreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-21860438973959815632010-12-12T07:03:35.577-08:002010-12-12T07:03:35.577-08:00Would it be possible to share where Ms. X lives?
...Would it be possible to share where Ms. X lives?<br /><br />Thanks, LisaSlayaDragonnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-14160519408345252292010-12-11T20:13:33.403-08:002010-12-11T20:13:33.403-08:00Sounds similar to Jamie Deckoff Jone's improve...Sounds similar to Jamie Deckoff Jone's improvement. The more positive case reports, the better..Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-89433418714403388302010-12-11T06:19:26.008-08:002010-12-11T06:19:26.008-08:00I hope the UPMC HIV/AIDS Clinic in Pittsburgh is r...I hope the UPMC HIV/AIDS Clinic in Pittsburgh is reading this. They have refused to treat me for CFS.And yet who has more experience with these drugs?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-32174204116478068442010-12-10T20:59:19.766-08:002010-12-10T20:59:19.766-08:00I'd also be curious to know which doctor would...I'd also be curious to know which doctor would it be in San Francisco? That would really help. Thanks,Anonymoushttps://www.blogger.com/profile/12281551619335996831noreply@blogger.comtag:blogger.com,1999:blog-3446911767611771282.post-5323834933982130232010-12-10T19:28:33.313-08:002010-12-10T19:28:33.313-08:00Just curious if Ms. X was XMRV+. I didn't see ...Just curious if Ms. X was XMRV+. I didn't see a mention of this, just that she was diagnosed with CFS.Anonymousnoreply@blogger.com